{"id":8107,"date":"2023-06-22T15:18:59","date_gmt":"2023-06-22T15:18:59","guid":{"rendered":"https:\/\/cursadebombers.barcelona\/?p=8107"},"modified":"2023-06-22T15:18:59","modified_gmt":"2023-06-22T15:18:59","slug":"solidariament-parlant-presenta-el-repte-solidari-impulsat-per-la-lama2","status":"publish","type":"post","link":"https:\/\/cursadebombers.barcelona\/es\/2023\/06\/22\/solidariament-parlant-presenta-el-repte-solidari-impulsat-per-la-lama2\/","title":{"rendered":"Solid\u00e0riament Parlant presenta el repte solidari Impulsa\u2019T per la Lama2"},"content":{"rendered":"<p><b>&#8211; Los bomberos del turno D de Vall d\u2019Hebron corren junto a Pau Mart\u00ed en este reto solidario para la cura del d\u00e9ficit de merosina<\/b><\/p>\n<p><b><\/b><b><\/b><b>&#8211; Impulsa\u2019T per la Lama consigui\u00f3 en la anterior edici\u00f3n ser el cuarto reto con m\u00e1s recaudaci\u00f3n<\/b><b><\/b><\/p>\n<p>&nbsp;<\/p>\n<p><span style=\"font-weight: 400;\">El programa mensual de la <\/span><b>Vueling Cursa de Bombers<\/b><span style=\"font-weight: 400;\"> lleva por nombre <\/span><b>\u00abSolidariament Parlant\u00bb<\/b><span style=\"font-weight: 400;\"> y presenta una breve entrevista con uno de los retos solidarios m\u00e1s destacados de la \u00faltima edici\u00f3n de la carrera. En<\/span><b> julio<\/b><span style=\"font-weight: 400;\">, hemos tenido el privilegio de conocer a Impulsa\u2019T per la Lama 2, una organizaci\u00f3n liderada por los bomberos de <\/span><b>Vall d\u2019Hebron<\/b><span style=\"font-weight: 400;\">, que logr\u00f3 recaudar 2.207\u20ac, situ\u00e1ndose como el cuarto desaf\u00edo con mayor recaudaci\u00f3n en la edici\u00f3n anterior.<\/span><\/p>\n<p><b>Pau Mart\u00ed<\/b><span style=\"font-weight: 400;\">, bombero de Vall d\u2019Hebron del Torn D, corri\u00f3 la cursa de bombers de barcelona como bombero solidario para la asociaci\u00f3n impulsa\u2019T para la cura del d\u00e9ficit de merosina.\u00a0<\/span><span style=\"font-weight: 400;\">Se trata de una enfermedad minoritaria que afecta a 1 de cada 100.000 personas y actualmente no tiene cura. Es hereditaria y grave, y se clasifica dentro del grupo de distrofias musculares. Se caracteriza por provocar debilidad muscular desde la infancia, generalmente antes de los 2 a\u00f1os de edad.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Pau nos contaba que la asociaci\u00f3n Impulsa\u2019T tiene tres objetivos principales: colaborar y promover la investigaci\u00f3n para la cura del d\u00e9ficit de merosina, consolidar un registro de afectados y dar a conocer la enfermedad y crear una red de soporte para las familias que como \u00e9l, se encuentran en esta situaci\u00f3n.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Tanto \u00e9l como el resto de bomberos del turno, afirman que el d\u00eda de la cura es un d\u00eda muy emocionante porque se encuentran a otras asociaciones que tienen una situaci\u00f3n similar, y que el hecho de poder estar all\u00ed con personas en una situaci\u00f3n parecida a la de ellos es enriquecedor y en compa\u00f1\u00eda de los bomberos lo hace un acto \u00fanico. El core con su hija a la que le encanta hacer la cursa con su padre y espera con ansias la pr\u00f3xima edici\u00f3n.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Puedes acceder al <a href=\"https:\/\/www.instagram.com\/reel\/Cty6n1voW49\/?utm_source=ig_web_copy_link&amp;igshid=MzRlODBiNWFlZA==\"><span style=\"color: #3366ff;\">v\u00eddeo<\/span><\/a> de la entrevista en la cuenta de Instagram de la Cursa de bombers de Barcelona. Recuerda que participando en los desaf\u00edos, est\u00e1s apoyando a una causa crucial y urgente, como la investigaci\u00f3n de enfermedades poco comunes. Es una manera efectiva de marcar un impacto positivo en la vida de los dem\u00e1s y al mismo tiempo fomentar la solidaridad y la compasi\u00f3n.<\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Los bomberos del turno D de Vall d\u2019Hebron corren junto a Pau Mart\u00ed en este reto solidario para la cura del d\u00e9ficit de merosina, que consigui\u00f3 en la anterior edici\u00f3n ser el cuarto reto con m\u00e1s recaudaci\u00f3n<\/p>\n","protected":false},"author":4,"featured_media":8108,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[1],"tags":[],"class_list":["post-8107","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ 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